Real stories

Harry had his first seizure in September 2016. They continued, becoming more physical, until Harry was diagnosed with Rasmussen Encephalitis in summer 2017. Mum Nikki shares their story.

Henry was diagnosed with encephalitis at the age of four. Mum Andrea talks about changes in his behaviour following his brain injury and seeking support.

Many diseases can mimic encephalitis, making it hard to diagnose. Mum Sophie explains what this meant for her three-year-old daughter and shares Blair’s progress at The Children’s Trust and back home.

Frequent seizures led to a diagnosis of autoimmune encephalitis for five-year-old Amelia. Mum Sophie shares their story.

Amelia was eight years old when she was diagnosed with ADEM, a rare type of autoimmune encephalitis. Mum Kelly shares their experience of brain injury.

Millie was 18 months old when encephalitis resulted in a brain injury. Millie is now eight – mum Sam shares her story in a Q&A.

Millie was only 18 months when severe seizures turned out to be encephalitis which resulted in a brain injury. Her mum Sam tells their story.